Archive for August 9th, 2009

All Fired Up

August 9, 2009

So… I have to say it took a couple of days to cool off from this to be able to write without every other word being a curse word. I was told the statement, “MS sounds an awful lot like BS!!!”

ARE YOU KIDDING ME? ARE YOU BEING SERIOUS???? Could you honestly be any more insulting to me?

Living with my eyes closed, goin day to day
I never knew the difference, I never cared either way
(Pat Benetar, All Fired Up)

Before being diagnosed with MS, I did take so much for granted. Everyday luxeries that can be such a challenge for me now. MS changed my life forever on how I view the world, the luxeries I thank God I can do when I can do them!

So, everytime I lost my ability to walk and needed the assistance of my cane or walker – that’s BS?
Everytime I have a seizure that makes me flop like a fish out of water – that’s BS?
Everytime I lose feeling in my hands and my arms and I can’t feed myself – that’s BS?
Needing hand controls in my car because from day to day we never knew if I would be able to walk – that’s BS?
Having my doctor sit on my hospital bed and tell me he didn’t know if I would ever walk again – that’s BS?
Three years of chemotherapy that has now put my heart into failure – that’s BS?

Ain’t nobody livin, in a perfect world
Everybody’s out there, cryin to be heard
Now I got a new fire, burnin’ in my eyes
Lightin up the darkness, movin like a meterorite

I’ll tell you what is BS – your medical opinion on this matter. And if you think this is the last you will hear of this, you have another thing coming. I am all fired up over this! You can call me BS all you want to, but back off of the other 400,000 people diagnosed in the US with MS.

That’s right, did you know that approximately 400,000 Americans have MS? Every week about 200 people are diagnosed and worldwide MS affects about 2.5 million people. So all of this is BS??? There are 4 types of MS. Before disease-modifying drugs became available, 50% of people with relapsing-remitting MS (which is what I have) developed secondary-progressive MS within 10 years. So, scientist came up with BS meds to stop the progression of a BS disease, is that what you’re still telling me???

The MS Society was founded in 1946. Across the country there are over 460,000 volunteers. So all of these people are volunteering for a disease that is just BS, they’re just wasting their time??? In 2007, the Society’s total revenue was $241 million. Are you calling that kind of money BS? There were over 100,000 cyclist that rode in over 100 MS Bike Tour rides across the country. And I was one of those cyclists – so all of this is BS????

All Fired Up
Now I believe there comes a time
All Fired Up
When everything just falls in line
All Fired Up
We live and learn from our mistakes
All Fired Up
The deepest cuts are healed by faith

I hope you learn from the mistake of calling this disease BS. It is anything but. It is a serious, debilitating disease that you wouldn’t begin to know how to handle. And as much as this disease may cripple me, it’s not near as crippling as your ignorance is to you. Keep that in mind next time you want to try and pick on me or one of my kind. And let this be fair warning, you make a comment like that again, you will be checked – fast. Because you’ve got me all fired up, and I’m not backing down!